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Cancer - Online Information Sources FAQ

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Archive-name: medicine/cancer-faq

See reader questions & answers on this topic! - Help others by sharing your knowledge
                        THE  CANCER  FAQ
Please contribute to the FAQ! This is an evolving resource and is only as good
as you make it! If you have a source of online information about cancer that
is NOT listed above, nor referenced by any of the listed resources, please
contact me and let me know!  I am eager to make this list as comprehensive
and up-to-date as possible. Please keep in mind that mention on this list
DOES NOT imply endorsement!
Good luck, God bless you, and KEEP FIGHTING.  Informed, motivated patients
live longer!

Send an email to and have 1 line in the 
message body: afd add cancer faq 

The MOST CURRENT Web version of this document may be found at:
Maintainer: E. Loren Buhle, Jr. Ph.D.
Revision Date: 7-Nov-1995

Copyright 1995. This information may be reprinted as long as the date and 
maintainer are clearly stated and this is information is made freely available 
for dissemination.

1. Where can I find information about cancer on the Internet?
2. What is the recipe for the "hot candy" to relieve mouth sores?

ANSWER 1.  ********* TABLE OF CONTENTS ***********
a. Announcements
b. CancerNet 
c. Gopher and WWW Resource List
     - Disease Specific Resources
     - Government Sites
     - Educational Institutions
     - Dedicated Cancer Resources
     - Other Resources
d. Commercial Online Resources
     - Compuserve
     - Prodigy
     - America Online (AOL)
     - NYU BBS for Brain Tumor Support and Research
     - Other Online Services
e. Non-Commercial Online Resources
     - FDA BBS
     - Med Help International
     - The Florida Coalition for Cancer Survivorship BBS
     - FidoNet
f. Online library catalogs (to help find books)
g. NetNews (Usenet)
h. Shareware Programs via FTP 
i. The Internet Health Science's Resources List 
j. The Better Information Group
k. Online Mailing Lists (Listserves)
l. The BMT Newsletter
m. The Powerlines & Cancer FAQ
n. Free Drug Program
o. The Texas Cancer Data Center

| *ANNOUNCEMENTS for November '95* |
------------------------------------ - Non-Hodgkin's Lymphoma - American Cancer Society - Association for the Cure of
   Cancer of the Prostate - Prostate Pointers 
  "Will the Junk Science Stand Up?" An analysis of the Mayo Clinic Women's 
  Study and Harvard/Brigham Nurses Study in Relation to The Silicone
  Gel Breast Implant Controversy - EduCare, Inc. - Breast Health and 
     Breast Cancer and Breast Cancer Network - Mike's Lymphoma Home Page - The National Marrow Donor Program - NCI's ICI page - Gray Laboratories (Radiobiology) [STATUS?] - National Breast Cancer Centre Home Page (Australia)
   - George Allen's Colon Cancer Information -
  Basic and Clinical Aspects of Prostate Cancer -
  Coalition of Silicone Survivors - Implant Survivors - Update of Implant Survivors - United Silicone Survivors of the World,
    specifically, see the "Support Network Folder"

http:// - University of Arizona Cancer Center - CenterWatch Clinical Trials Listing Service 
    Clinical Trials and Noteworthy Treatments for Brain Tumors - World Congress on Cancer Organizations -
     Algy's Herb Page - Medicinal - Death and Dying 
   - The Natural Death Handbook - on the 'Net
   - "Before and After"
   - Facts for Consumers from the Federal Trade Commission:
     Funerals: A Consumer Guide


|  CancerNet  |
CancerNet is by far the most comprehensive and up-to-date source of
information about cancer.  It is maintained by the (United States) National
Cancer Institute.  Included in this database is a well-maintained list of
other information sources, such as MEDLINE, so for most people this is THE
place to start.  Sources of information that are listed in CancerNet
are (usually) not repeated in this FAQ.
Send e-mail to:

No longer: [OBSELETE!!]
with no subject, and the word "help" as the message.  They will send you a
message explaining how to use the system.  They can also be reached by calling
the voice line: 1-800-4-CANCER.  For those without email access, they can send
out brochures and FAX'es.
CancerNet is available through voice phone, traditional mail, FAX, e-mail,
gopher, ftp, and World Wide Web (WWW).  Contact CancerNet via e-mail or 
voice phone for current access instructions.

|  Gopher and WWW  |
To get the most current Gopher/World Wide Web addresses of interest,
it's best to just get on and start searching.  To help you get started,
here's a list of servers that others have found useful.  The list may
not be up to date, but it should provide some good starting points.
If you don't know what Gopher and WWW are, look for some FAQ's in the
new users newsgroups or the gopher/WWW newsgroups, or contact your local
help desk or system administrator. A WWW resource address is identified
by having "http://" in the beginning of the address. A gopher server
has a "gopher://" at the beginning of the address.

**** Disease Specific Servers ****

Breast Cancer Servers
--------------------- - National Breast Cancer Centre Home Page (Australia) - EduCare, Inc. - Breast Health and 
     Breast Cancer and Breast Cancer Network -  Breast Cancer Information 
  "Will the Junk Science Stand Up?" An analysis of the Mayo Clinic Women's 
  Study and Harvard/Brigham Nurses Study in Relation to The Silicone
  Gel Breast Implant Controversy - Breast Self-Exam training
    material  from MED.I.A. Inc Medical Interactive Applications...very 
    good graphics! - Community Breast Health Project 
     in Palo Alto, California - Hotline for Breast Cancer Info - Breast Cancer Action in Ottawa, Canada - Avon's Breast Cancer 
      Awareness Crusade - A personal
         perspective on breast cancer and reconstruction shared in pictures 
         and words. -
  Coalition of Silicone Survivors - Implant Survivors - Update of Implant Survivors - United Silicone Survivors of the World,
    specifically, see the "Support Network Folder - Navelbine
     Clinical Trial Information for Breast Cancer (NYU Medical School)
gopher:// - List of Women's Cancer
     Groups in the United States and Canada - National Lymphedema Network - The Lymphoedema Association 
       of Australia - Patient's Experience with ABMT for 
     breast cancer. - Sterling Clinical Resources
   Clinical Trial information - breast cancer - NYU Medical Center, 
    Women's Health Study - Bone Marrow Donors Worldwide WWW site

Gynecologic Oncology
-------------------- - Gynecologic Oncology Server at the 
       Washington Univ. in St. Louis - Patient, Heal Thyself

--------- - Mike's Lymphoma Home Page -  OncoLink section on lymphoma - Genetics of Hodgkins -
   Amanda is 28 and has just been diagnosed with Hodgkin's disease.</A> She 
   has put together a page containing her own story and all the major links to
   sources of Cancer information on the WWW including Cancernet, Oncolink
   etc. - Bone Marrow Donors Worldwide WWW site

Multiple Myeloma Servers 
------------------------ - International Myeloma Foundation - Aredia(r) for Multiple Myeloma

     Recognizing Melanoma - pictorial guide - UK cancer charity the "June 
         Foreman Melanoma Research Fund" - "A Brief Introduction to Skin
       Cancer, Ultra Violet Light, and the Hole in the Earth's Ozone Layer.
       What does it mean to you?"

Brain Tumors
------------ - Acoustic Neuroma Association - This is a list of
      clinical trials and noteworthy treatments for adult glioblastoma
      multiforme  (a form of brain cancer). 
    Clinical Trials and Noteworthy Treatments for Brain Tumors - Mass General Neurosurgical
        Service - Mass General Neuro-oncology
        Service - American Brain
           Tumor Association Home Page - W.M. Keck Foundation Center for Integrative
 Neuroscience (UCSF) - Univ. Southern California
 Neurosurgery - Emma Koenker's home page (brain 
   tumor patient). - Whole Brain Atlas - The National Rehabilitation 
   Center Home Page

Prostate Cancer
--------------- - Association for the Cure of
   Cancer of the Prostate - Prostate Pointers - Basic and Clinical Aspects of
  Prostate Cancer - The Wellness Web (prostate CA) - CoMed's Prostate Cancer WWW site - My Prostate and Me: Dealing with
    Prostate Cancer - Office of Technology Assessment: Cost and
     Effectiveness of Prostate Cancer Screening - Fermilab's Neutron
     Therapy and Prostate Cancer

--------- - The National Marrow Donor Program  - Leukemia Society Chapter
   of Maryland -The Leukaemia Research Fund
of the United Kingdom, covering all forms of leukaemia and lymphoma,
multiple myeloma, myelodysplastic syndromes, myeloproliferative
disorders and aplastic anaemia. 

Colon Cancer
   - George Allen's Colon Cancer Information

Emotional Support, Bereavement
------------------------------ - Rivendell Resources sponsors Griefnet, a
   collection of resources of value to those who are experiencing loss and
   grief. - Internet 
   Resources for Physical Loss, Chronic Illness, and Bereavement - ChronicIllnet's section on cancer - A place to honor grief - DeathNet, an 
   international archive specializing in all aspects of death and
   dying -- with a sincere respect for every point of view. - Death and Dying 
   - The Natural Death Handbook - on the 'Net
   - "Before and After"
   - Facts for Consumers from the Federal Trade Commission:
     Funerals: A Consumer Guide

General Cancer & Cancer-Related Servers

Government Servers
------------------ - NCI's ICI page - NCI PDQ in HTML format - International Cancer Information Center (NCI) - NIH WWW server - The National Cancer Institute's WWW (USA) - HyperDOC at US National Library of Medicine - NLM Online 
     Information Services - Fermilab Neutron Therapy - Grateful Med Factsheets 
     Cancer Incidence and Mortality by Race/Ethnicity in California, 1988-1991 - International Agency for Research on Cancer
      The International Agency for Research on Cancer (IARC) was established 
      in 1965 by the World Health Organization. IARC's mission is to 
      coordinate and conduct research on the causes of human cancer, and to
      develop scientific strategies for cancer control. The Agency is 
      involved in both epidemiological and laboratory research, and 
      disseminates scientific information through meetings, publications, 
      courses and fellowships. - US Dept of Toxic Subtances
     and Disease Registry (ATSDR) - public health programs concerning
     carcinogens - Food and Drug Administration (USA) - Environmental Protection Agency (USA) - The National Institute of Environmental Health 
     Sciences (USA) - US Department of Energy 
     Office of Human Radiation Experiments [CHANGED]
gopher:// - NIH gopher server

Educational Institution Servers
------------------------------- - Gray Laboratories (Radiobiology) [STATUS?] - University of Arizona Cancer Center - NCI CancerNet info
    from the University of Bonn - Medical Center - Stanford
   University Division of Oncology - The Fred Hutchinson Cancer Research Center
gopher:// - Pediatric Bone Marrow Transplant
      Program at Unviersity of Nebraska - Fox Chase Cancer Center - NYU Medical Center, 
    Women's Health Study - OncoLink, from the U. of Pennsylvania -
     Quick Information about Cancer for Patients and their Families (an index
     of many of the other resources on this list) - Le Journal du Cancer - Sloan-Kettering Cancer Center (New York) - Thomas Jefferson Cancer Center (Philadelphia) - Hypermedia Clinical 
     Practice Guidelines for Cancer Pain - The University of Texas 
     M. D. Anderson Cancer Center - The University of Liverpool 
     CRC Oncology Research Unit - H. Lee Moffitt Cancer Center Home Page - NYU Kaplan Comprehensive 
     Cancer Center - German Cancer Research Center, 
     Application of Positron Emission Tomography in cancer research - Emotional 
     Support Resources - University of Michigan Comp. Cancer Center
gopher:// - OncoLink, via gopher
gopher:// - M.D.Anderson (cancer center)
gopher:// - Dana-Farber (cancer center)
gopher:// - Sloan-Kettering (cancer center)
gopher:// - National Cancer Center Tokyo
gopher:// - IST (Nat Inst for Cancer Research) (Italy)
gopher:// - GWDG Goettingen
gopher:// - Stanford medical center

Dedicated Cancer Resources
-------------------------- - American Cancer Society - Cancer Links - Searchable Listserv Archives
    "Information gathering is a fundamental element of the fight against
     cancer. From this location you will have access to the centralized
     archives of all the cancer listservs where the information flows
     uncensored . Our user friendly interface will allow you to do
     structured searches across all those archives or to refine your
     searches to Time and Disease Specific delimiters." - The Imperial Cancer Research Fund. - Christie Cancer Research Centre - American Cancer Society, Calif Div - A Biopsy Report: 
   A Patient's Guide - The National Center for Genome Resources 
(NCGR) would like to announce our new Web pages regarding the Ethical, Legal,
and Social Implications (ELSI) of biotechnology. - National Childhood Cancer Foundation - CandleLighters Childhood Cancer Family Alliance 
  Candlelighters CCFA is a non-profit self-help group composed of families of 
  childhood cancer, community volunteers, and healthcare professionals. - World Congress on Cancer Organizations
gopher:// - International Union Against Cancer - 1995 Malaysia Year of Cancer 
   Awareness, a joint project done by CanCare and Malaysia Online - Medicine OnLine provides healthcare professionals
    and consumers with in-depth educational information about specific
    diseases. Medicine Online debutes with more than 600 pages of original
    and current cancer infomation. This service also includes Listserve
    discussion groups for both healthcare professionals and patients. - TeleSCAN -- Telmatics Services in Cancer (European)
    TeleSCAN is the first European Internet service for Cancer research,
    treatment and education providing a hypermedia (World Wide Web)
    interface to primarily European information resources and services 
    related to Cancer. TeleSCAN is produced by the MARIA Project of the EU - International Agency for Research on Cancer - NEOPLASMA
   Journal of Experimental and Clinical Oncology 
   Edited by Cancer Research Institute, Slovak Academy of Sciences, 
   Bratislava, Slovak republic -CancerGuide: Steve 
    Dunn's Cancer Information Page -  Darrel Kilius in Baltimore, MD Cancer 
    Patient Resource List, with an emphasis on sarcomas - EMF-Link (ElectroMagnetic Forces) - CANSearch: A 
     Guide to Cancer Resources on the Internet (National Coalition for 
     Cancer Survivorship) - A Memorial to Tom Mandell
     and his interaction with cancer, constructed by William Calvin 
     (TIME Online)

Other Resources
--------------- - CenterWatch Clinical Trials Listing Service - DNA moderated immunization WWW
    site including protocols, contacts, research info, etc. - The Amputee Home Page - AHI Online contains a wealth of information
    about how the mind and emotions can be used most effectively to regain
    health. The approaches described here are designed to be used in
    conjunction with standard medical practices. - The Wellness Web - Roxane Pain Institute - American Medical Association - Medical Research Council (UK) - International Agency for Research on Cancer [status?] - MedWeb:Oncology - Arlington Cancer Center (Dallas/Ft Worth) - List of Psychosocial &
    Support newsgroups - PharmWeb: Pharmacy Information Resources - Sandoz's WWW site, mostly
   containing information on transplantation and cyclosporine - Human Genetics WWW in 
    conjunction with the HUM-Genetics Listserve - Patient Advocacy Numbers - List of Medical Resources - HospitalWeb, a list of 
    WWW hospital sites on the Internet - EMF-Link, information on biological 
    and health effects of electric and magnetic fields (EMF) - SpeciaLove, a resource devoted to 
    patients & children with cancer to facilitate networking. This resource 
    is oriented to the family aspects of childhood cancer. Special Love, Inc. 
    started in 1983 by Tom and Sheila Baker, who lost their 13 year old 
    daughter to leukemia. - The Anthony Nolan 
    Bone Marrow Trust, a  leading centre for research and also runs the UK 
    register of potential donors. The more people there are on the register, 
    the better the chance of finding a compatible donor. This site references
    other BMT international BMT sites. - The Multimedia Medical
    Reference Library. - American Share 
   Foundation. This organization is involved in organ and tissue 
   donation and transplant. - PharmInfoNet(tm) is devoted to delivering useful, 
   up-to-date, and accurate pharmaceutical information to pharmacists,
   physicians, and patients. A section of Medical Sciences Bulletin deals
   with reviews of oncology drugs. - Total Pricing Systems Inc. has developed the "PPS 
   On-Line System". Its goal was to develop a flexible and extensible 
   system to present pharmaceutical information to the medical community 
   and the future home Healthcare market. - National Community of 
     Charitable Aviators. The Air Care Alliance is a nationwide
     association of humanitarian flying ACA members help needy patients
     travel to facilities where they are able to receive medical attention
     they would otherwise do without. - Life Extension Foundation
    The Life Extension Foundation is dedicated to the pursuit of a longer, 
    healthier lifespan. We provide our members with information about the 
    latest life extension research, products and therapies. - Cancer and Natural Medicine: A 
    Textbook of basic Science and Clinical Research - Goodwin Institute for Cancer Research - Kombucha Home Page - Burzynski Research Institute home page
    (home of the Antineoplastons - alternate medical info), including:
           * General Information About Brain Tumors
           * Clinical Trials for Adults with Brain Tumors
           * Clinical Trials for Children with Brain Tumors
           * Theory and History Behind Antineoplastons
           * National Cancer Institute Report on Antineoplastons

[Address: Burzynski Research Institute, 12000 Richmond Ave, Houston, TX 77082
 Phone: 713-597-0111, FAX: 713-597-1166]</A> The Institute for Advanced
    Studies in Medicine. Nutritional and Prevention articles, free second
    opinion, etc. - Gerson Therapy - Simone's Shark Cartiledge - Source for Rare & Exotic Herbs [CHANGED] -
     Algy's Herb Page - Medicinal - Health sciences resources list

gopher:// - Global Biological Information Servers
      at Harvard - also by topic. - Alternate views of cancer
    treatment, chemotherapy, electromagnetism...
|  Commercial online services  |
Many online services have resources of interest to ca patients:

America Online (AOL):

American Cancer Society Online (Keyword: ACS) 
 Scientific American Cancer Journal (Keyword: Cancer J SciAm)
Online Support Groups:
"Living with Cancer", Sundays 7 PM EST
"Cancer Survivors", Mondays 10 PM EST
"Loved ones of Cancer Survivors", Tuesdays 7PM EST
To get to the forum room, go to the ACS area 
(Keyword: ACS or keyword: CANCER) and
select the Health and Medical Chat icon.


Cancer Forum - GO CANCER
Consumer Reports Drug Database - GO DRUGS
Health Database Plus - GO HLTDB
Knowledge Index - GO KI
MedSig Forum - GO MEDSIG
NORD Services/Rare Disease Database - GO NORD
Physician's Data Query - GO PDQ

Medical Support Board
        OTHER (breast implants)

  The NYU BBS for Brain Tumor Support and Research 
The head of Neurosurgery at NYU set up a commercial bbs system for
brain tumor sypport and research.  It is called:  Brain tumor on-line.
For information, call voice:  800-785-3312. It is pretty new, and not
many people are on it yet, but there are a few doctors from NYU and
the Mayo clinic - so it is a good source of info if you have a brain
  Other Online Services
At the time this FAQ was updated, no one has commented on the
quality of the cancer forums on other online services, but such
comments would be welcome.
  To Contact A Commercial Online Service Provider:
To start an account, contact the service of your choice.  Each
service can be contacted by voice through an 800 number.  Call
the 800 directory service (voice) at 800-555-1212 for the 800
number of the service you would like to try.  Most services offer
free or reduced-cost service for the first month of use.  You
might want to check recent computer-related magazines for
special offers and coupons.

|  Non-Commercial online services |

For information on specific drugs, you might try the FDA BBS
(U. S. Food and Drug Administration's Bulletin Board System).
Using the telnet facility, telnet to "", and
login as "bbs".
Technical Support is available for the FDA BBS System from
7:00 A.M. to 7:00 P.M. EST Monday through Friday. For support,
contact the Parklawn Computer Center (PCC) at (301)443-7318.
If you are looking for a specific report or article, contact
the FDA Press Office at (301)443-3285.

6300 North Wickham Road
Suite 130, Box 188
Melbourne, FL 32940-2029
Voice: (407) 253-9048
Fax:   (407) 253-1819
BBS:   (516) 423-0472

Med Help International is a non profit organization which provides
medical information written in non-technical terminology in order to
support patients and their families who have been struck by the tragedy
of serious illnesses. 

We are comprised of an all-volunteer staff of physicians and other
health care professionals who are electronically connected. 

Med Help has made available to the public our computerized system
whereby people may obtain information that is on the system at no

The system may be accessed via Internet (ftp, telnet or http) to:
    via WWW:

Or via dial-up (modem) to: (516) 423-0472 (N81- ANSI)

The National Kidney Cancer Foundation BBS
BBS number 800-280-2032

The Florida Coalition for Cancer Survivorship BBS 
Date: Sun, 18 Sep 1994 11:13:22 EST
From: "Drew H. Wolfe 813-253-7233" <>
The Florida Coalition for Cancer Survivorship BBS, FCCS BBS, is a new BBS
devoted to the needs and concerns of cancer survivors, their family 
members, and oncology health care professionals. Highlights of the 
FCCS BBS include:

NCI's PDQ and CancerLit, hundreds of other cancer-related files and 
shareware, forums devoted to many different areas of cancer (disease 
specific, cancer support and support groups, message bases for oncology 
health care professionals), a database where you can post or read 
cancer stories, a database of tumor images, . . .  

You can access the FCCS BBS at the following toll free number:
(800) 816-2744. Shortly, the FCCS BBS will connected to FidoNet and 
Internet.  For more information contact Drew  H. Wolfe,

| FidoNet |

Formerly known as the Cancer-Leukemia Echo on Fido, 'Survivors' is on
the Fido backbone and is available to any BBS that receives any FIDO
echos.  Check with your sysop about getting it. It is no longer just
for Cancer or Leukemia patients.  It was started by a couple whose
daughter was diagnosed and treated for Leukemia.  They found this
method of getting and exchanging information helpful.  The echo now
handles survivor topics of a wide range.  Cancer, Leukemia, Rape,
physical and mental problems, and much more. 

|  Online library catalogs (to help find books)  |
There are many good (and some awful) books about cancer and
cancer-related issues.  You local library may have its catalog
online, especially if it's a University-related library.

TIP: If a book you are reading makes you feel upset, for any reason, PUT
IT DOWN. Reading tastes are a very individual matter. Never feel obliged
to read a book just because a well-meaning friend has suggested or given
it to you...or because it's a bestseller. It's YOUR life. 
(This tip is courtesy of: Ceil Sinnex 
|  Net News  |
In case this FAQ was forewarded to you by e-mail, you might
Want to know that it is posted every week or so on the
news groups "", and "".  These are
both good newsgroups for cancer information and support.
The FAQ is also posted on "news.answers", a group for FAQ's. 

|  Shareware Programs via FTP  |
From: hoang@Xenon.Stanford.EDU (My Khanh Hoang)
Date: 17 May 1994 08:02:51 GMT
      The following ftp site: has several shareware
      programs that may be helpful. One particular relevant program is
      Reduce Cancer Risk in pub/pc/win3/misc.
|  The Internet Health Science's Resources List  |
An update of my BITNET/Internet Health Science Resources List
(03-93) is now available via ftp from FTP2.CC.UKANS.EDU.
 This document is an attempt to create a comprehensive list of
health science resources available on the wide area networks. The
list includes Listserv groups, Usenet groups, Freenets, Data
Archives, Electronic Publications & Health Science oriented
databases.  This update also includes expanded gopher and WWW
sites with many URL addresses, pointers to health related
documents, and a large E-Journal section, along with several new
databases and libraries.  I hope you'll find this document useful
for your Internet travels.
 Access via ftp: FTP2.CC.UKANS.EDU
 Directory: pub/hmatrix
 FILE: medlst03.txt  or
Lee Hancock
Internet - LE07144@UKANVM.CC.UKANS.EDU
Owner & Editor: Internet/BitNet Health Science Resources List
Owner CPRI-L ( Computerized Patient Records
      HMATRIX-L ( Online Health Resources
|  The Better Information Group  |
(While not an online source, the Better Information Group
is included here for those interested in Breast Cancer.
The information was received from in July 1994.)
Better Information Group publishes information guides. One of
them is a basic understanding of Breast Cancer and treatments, etc.
Their guides are $2.00 each. For other guides they have a toll free
number giving details 1-800-814-4139. Their mailing address is:
Better Information Group
8815 N. 12th Place, Station T
Phx, AZ 85020
| Online Mailing Lists (Listserves)|

Note: - Searchable Listserv Archives
    "Information gathering is a fundamental element of the fight against
     cancer. From this location you will have access to the centralized
     archives of all the cancer listservs where the information flows
     uncensored . Our user friendly interface will allow you to do
     structured searches across all those archives or to refine your
     searches to Time and Disease Specific delimiters." 

Bone Marrow Transplant List
To subscribe:  send mail to with the 
word "subscribe" (no quotes) in the body of the message. Once you subscribe,
you will be able to mail messages to

The online archive of BMT-Talk messages is on the World Wide Web at:

Brain Tumor Discussion Mailing List:
To subscribe: Send a message to: LISTSERV@MITVMA.MIT.EDU
Leave the subject line blank, and set the first message line to:
subscribe BRAINTMR your_first_name your_last_name
Breast Cancer Discussion Mailing List:
To subscribe: Send a message to:
Leave the subject line blank, and set the first message line to:

subscribe breast-cancer  yourfirstname yourlastname

"At the present time, there are about 600 people from around the
world subscribed to the BREAST-CANCER List. This translates to
approximately 20-50 postings daily. In order to allow efficient
searching of digests and archives (see below), as well as to give
recipients some idea as to the issues you wish to address in your
posting, we suggest that the "Subject" line of all submissions
contain at least one of the following abbreviations that might best
describe its contents:
          ALT- alternative, or unconventional cancer therapies
          ANCMT- events, announcements
          BMT- aggressive chemotherapy with bone marrow transplant
               or stem cell rescue
          CHEM- chemotherapy, antineoplastics
          HUMR- humour
          MAMO- imaging, mammography, radiology
          MENO- menopause, hot flashes
          METS- metastases, advanced breast cancer
          PATH- pathology, biopsies, staging
          RECN- reconstruction, prostheses, body image
          RECR- recurrence
          INT- issues of intimacy, relationships and sex, family
          SUP- messages of support, words of encouragement
          TAMX- tamoxifen and related drugs
          MISC- miscellaneous (i.e., anything we might have
In addition, due to mail volumes, email addresses which repeatedly
bounce List postings, will generally find themselves unsubscribed
relatively quickly. Please do not take offense. You have very
likely not *done* anything for which this might be retribution. If
you find yourself unceremoniously signed off without your
knowledge, check that your mailbox is not full, and that your
system is not down. If all is well, simply resubscribe.

By sending a "SET BREAST-CANCER DIGEST" command to, you can change your mechanism of
receipt of postings- from individual, full-header messages received
as they are sent to the LIst by subscribers, to a single (or twice)
daily collection or "digest" of messages with condensed headers.
This is particularly useful if you have limited mailbox space, pay
per message received, or simply like to download mailings and
search according to your particular interests. To revert to default
settings (i.e., to receive individual postings), send a "SET

You may leave the list at any time by sending a "SIGNOFF BREAST-
LISTSERV requires a confirmation of your request to signoff. Please
do not overlook this, because without it your request will be

To Access Breast-Cancer Listserve Archives:

Go to:
Select link entitled:  Cancer Listservs, Gophers and Other Online Information
Select directory:  BREAST-CANCER (listserv Description and Archive)
Select directory:  BREAST-CANCER Archive
Select year (1994 or 1995)
Select month
Select date
Select message from titles

To keyword search, select:  "Search Archived postings by keyword"
which is the first item on the BREAST-Cancer Archive page.

A very intensive general support group highly recommended!
To subscribe: Send a message to: LISTSERV@WVNVM.WVNET.EDU
Leave the subject line blank, and set the first message line to:
Ovarian cancer mailing List:
1) new name: Ovarian (to cover all Ovarian issues, not just ovarian-cancer)
2) listserv:
3) how to subscribe: subject blank; message text should be:

   subscribe ovarian First-name Last-name

4) owner:
HUM-MOLGEN mailing list:
In conjunction with the related World Wide Web site:
(via NETSCAPE; capitals in the adress are important)

The conventional E-mail service and the WWW-site are set up as
one interactive unit: The E-mail service will further focus on
condensed, summarized active information and communication of
your key-interest. The WWW-site will focus on much more extensive
passive information and communication, which can also be selected by
choice. In general, subscribers to HUM-MOLGEN will have the
advantage when it comes to pre-information, new features, etc.

Both list- and WWW communication on HUM-MOLGEN are equally
divided in TOPICS, such as you are used to (NEWS, CALLs,
ANNOuncements, COMPuters science in genetics and Internet
highlights, molecular DIAGnostics/clinical research,
LITErature,BIOTechnology/molecular biology,ETHIcal/social)

Communication on HUM-MOLGEN remains entirely FREE and very FAST.
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sent or received on HUM-MOLGEN. COMP specializes in communica-
tion in Internet highlights and computational genetics. The
DIAG section is especially suited for communication between
clinicians and biologists. BIOT will a.o. provide communicati-
on about new products and information about new techniques as
well as commercialisation of Human Genome research.


-A Medical, Clinical Genetics and DNA diagnostic Service on-line.
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The WWW-site is still under construction; new features and new
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Hem-Onc Listserv - Leukemias, Myelomas, Lymphomas....
How to SUBSCRIBE to the Hem-Onc list:

1)  Send electronic mail to this e-mail address:
2)  Leave the Subject line blank (or type 1 character if your software 
    requires something there)
3) Place the following message in the body of the mail:
        subscribe hem-onc your-first-name your-last-name

Prostate Cancer Listserv
To SUBSCRIBE to the Prostate list: 
1) Send electronic mail to this email address: 
2)  Leave the Subject line blank or enter a single character if your    
email program requires something there.   
3) Place the following message in the body of the mail: 
       subscribe Prostate First-name Last-name 
Medicine OnLine Newsgroups
1. Mol-cancer-prof 
   Healthcare Professional discussion group - Chemotherapy, Drug Info

    This forum requires registration and is for health care professionals.
Every registered member is able to view the archives of previous messages and
post questions, answers, files, and information into the discussion group
without prior review. All activity in the group is monitored by Wellcome
Oncology Drug Information as well as the facilitators. 

To subscribe to mol-cancer-prof, send the following in the body (not
the subject line) of an email message to "":

	subscribe mol-cancer-prof

2. Consumer discussion group - drug information

    This discussion group is open to anyone interested cancer treatment
discussion. Every member is able to view the archives of previous messages and
post questions, answers, files, and information into the discussion group
without prior review. 

To subscribe to mol-cancer, send the following in the body (not the subject 
line) of an email message to

    subscribe mol-cancer 

Clinical Trials mailing list:
This list is directed to those interested in the design, management and 
execution of clinical trials.   To subscribe, send an EMAIL
message to:
The body of the text should read (exactly as written):

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The purpose of the Clinical-Trial-Finder listserv is to help those
seeking clinical trials for any problem to communicate with hospitals
and other medical providers offering the same.  The list will be
moderated. Medical facilities are urged to subscribe to the list and
post detailed descriptions of trials they are conducting or intend to
conduct.  The more details given the better. Also, the trial's approval
by an appropriate authority should be shown. 

Patients or caretakers should post as much information as they are
comfortable describing as to medical problems for which they are seeking
a medical trial. 

Discussion in general of trials and medical problems should not be
posted to the list.  The idea is to keep the bandwidth at a minimum so
that all interested will keep watch for postings without feeling
overburdened by too much mail. 

To subscribe send to
the message
subscribe ctf <full name>

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|  The BMT Newsletter  |
From: (Arthur D. Flatau)

The BMT Newsletters are on-line.  Also on-line is the book: "Bone
Transplants: A Book of Basics for Patients" and all the issues
the BMT Newsletter.

The book and the newsletters since January, 1994 are available on New
State Breast Cancer Information Clearinghouse (BCIC) gopher
These do not have any pictures.

gopher to or if you use a world-wide web brower (e.g.
Mosaic) the URL is

Look under "Special Collections: Breast Cancer Information
Clearinghouse" then "Sources of Medical Information and Support" and
then "BMT Newsletter".

The book and all the newsletters up to the November, 1994 issue
(issues 13 to 26), with pictures on OncoLink, accessible via the World
Wide Web at: and on
OncoLink's gopher under "Medical Oncology/", submenu of
"Bone Marrow Transplant Information (Patient)" or
"Bone Marrow Transplant Newsletters/"

In my opinion the BMT Newsletter is the best single source of
information for patients considering undergoing a bone marrow

|  The Powerlines & Cancer FAQ (i.e. do powerlines cause cancer?)  |
From: (John Moulder)
Date: 6 Jul 1994 19:41:57 GMT
FAQs on Power-Frequency Fields and Cancer
The primary anonymous FTP archive is:
This archive contains both the posted 6-part version and a complete 1-part
The FAQ sheet will be archived, after varying intervals, in the following
Anonymous FTP: ""
Directory: /pub/usenet-by-group/news.answers/powerlines-cancer-FAQ
Files: part1, part2,... part6
E-mail server:
-To get the current FAQ you would send the following message
   send /pub/usenet-by-group/news.answers/powerlines-cancer-FAQ/part1
   . . .
   send /pub/usenet-by-group/news.answers/powerlines-cancer-FAQ/part6
On GEnie in the library of the Space and Science Roundtable (M460;3). The
file is called EMF-FAQ.ZIP.
On World Wide Web at:
            usenet/powerlines-cancer-FAQ/top.html  (all one line!)
In addition, there is also: EMF-Link(c), a multimedia resource produced
by the EMF Clearinghouse, a project of Information Ventures, Inc.
EMF-Link provides substantive information on biological and health
effects of electric and magnetic fields (EMFs) from common sources such
as power lines, electrical wiring, appliances, medical equipment,
communications facilities, cellular phones, and computers.

|  Free Drug Program  |
From: (William D. Sterling)
Date: Thu, 28 Jul 1994 17:34:49 GMT
If you are financially distressed by the high cost of your cancer
medication you can try to obtain free medication under a program
operated by the United States Senate, Department of Aging.
Majority Phone 202-224-5364 Minority phone 202-224-1467
At least 31 Drug companies will give 3 month supplies of
drugs under the "indigent drug program" when requested on a form
that your doctor can fill out.
Call the above numbers for a list of the companies, drugs and
contact phone numbers.
The same list can be found via gopher at
under the menu selection indigent drugs.
|  The Texas Cancer Data Center  |
From: (Arthur D. Flatau)
Date: 30 Jun 1994 15:36:15 -0500
Via Internet:  telnet
Via modem:  dial 800-788-9293 (in Houston or outside Texas 713-794-5858)
Modem settings: No parity, 8 data bits, 1 stop bit, Full Duplex
You need to have VT100 emulation.
E-mail can be sent to  "users are
encouraged to send suggestions, comments or questions about the
system or data provided."

- - - ---------
- - - ---------

LINCS is a FREE public service that provides a searchable on-line
human services resource directory Internet mail and usenet is available.

LINCS-BBS -- 408/727-7227  Settings N81, to 14,400 baud, 3 lines.

FTP site:         Our directory, called phpsetup.exe
   login: anonymous              is available from this site and our
   passw: your email address     WWW page.  It is searchable and you
          cd pub/LINCS           may feel free to share this program
                                 with others.  We welcome your feedback
                                 and comments.  EMAIL TO:
                                 The directory is updated regularly.

Real World:  3041 Olcott Street, Santa Clara, CA 95054-3222
               408/727-5775  FAX: 408/727-0181

One is for a taffy, the other for another sort of candy. 
I've not made them yet.

Recipe 1: From Joy of Cooking, 1974, p540.
Heavy pan, big enough to account for foaming.
2 cups brown sugar
1/4 cup molasses
1/2 cup butter
2 tbs water
2 tbs vinegar
1/2 tsp cayenne pepper (in this case, it was Durkee brand). Stir all
ingredients except pepper together over low heat until sugar dissolved.
Boil gently, stirring frequently, until candy is at hard crack stage:
300 degrees. Add pepper at the end of the boiling. Drop candy from
teaspoon onto buttered slab or foil to form patties. 

Easy? There are candy tricks: Never double recipes, use a large enough
pan, and apparently candy thermometers are fairly inexpensive and well
worth the price. Above 200 degrees, the temp really takes off, and has
to be watched carefully. 
Stages of candy: 
   Stage 1: softball-234-240 F- candy dropped into cold water is soft. 

   Stage 2: firm ball, 242-248 F, candy in cold water is firm, but flattens
            under pressure. 

   Stage 3: Hardball, 250-268 F, candy is hard, but pliable. 
        Soft Crack: Candy makes hard but not brittle threads 270-290 F. 
        Hard Crack: threads are hard and brittle, 300-310 F. 

So, without a candy thermometer, you can approximate temperatures.
Recipe 2: Betty Crocker, p164 (no other data)
1 cup sugar
3/4 cup light corn syrup
2/3 cup water
1 tbs cornstarch
2 tbs butter or marg
1 tsp salt
2 tsp vanilla
1/2 tsp cayenne pepper
8x8x2 buttered pan
In 2 qt saucepan, add sugar, corn syrup, water, cornstarch, butter and
salt. Over medium heat, stirring constantly till hard ball stage (256F).
Remove from heat, stir in vanilla and pepper. When cool enough to
handle, butter hands and pull until satiny and stiff. Pull into long
strips, cut into 1" pieces, and wrap with wax paper. (I don't know what
the buttered pan is for.) 

Author: Lucie Bergmann Shuster (

I must take issue with the recipe for the cayenne candy. I presume it is
for chemo mouth sores, and GI tract problems. The quantity of cayenne is
far to low for the volume to be effective. I am inclined to recommend 1/4
cup of cayenne, or certainly 2 tablespoons worth per recipe. In both cases
it is imperative that the pepper be added before the candy hardens up or
while the conncoction is in the cooling state.

My source of info is Michael Tierra, "The Way of Herbs". This is what he
says - "Taken as a daily tonic, one-quarter teaspoon three times
daily,..." - this is straight pepper. The key concern is that the pepper
gets hotter when heated. 

I'd opt for recipe number two and butter hands with pepper. Adding 1/8 of a
teaspoon per taffy candy. That should do the trick, providing the patient
isn't troubled by benign gall stones. 

(end of the Cancer FAQ)

E. Loren Buhle, Jr. Ph.D.        INTERNET:
*** The views expressed here are mine and do not reflect the views or
*** opinions of my employer!                          Phone: 610-622-4293
P.O. Box 7806                  Philadelphia, PA 19101   FAX: 610-622-1343

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