Major Agencies - Hemophilia

The National Hemophilia Foundation, 116 W. 32nd Street, 11th Floor, New York, New York 10001; (212) 328-3700, was established in 1948 to serve the needs of hemophiliacs and their families by ensuring the availability of treatment and rehabilitation facilities. It is estimated that there are as many as 100,000 males suffering from hemophilia, an inherited disease.

The long-term goal of the Foundation is to develop a national program of research and clinical study that will provide new information about early diagnosis and effective treatment of the disorder as well as trained professional personnel to administer patient care.

The development in recent years of blood-clotting concentrates is the most important advance to date in the treatment of the disease. This development, supported in part by the Foundation's 42 chapters, makes it possible for patients to have elective surgery and dental work, and to eliminate much of the pain, crippling, and hospitalization of those suffering from hemophilia.

The need for blood supplies from which to extract the clotting factor caused the Foundation to embark on an extensive campaign for blood donations. For this purpose, it has been working closely since 1968 with the American Red Cross and the American Association of Blood Banks. It also maintains close ties with various laboratories and research groups in the development of more powerful concentrates that can be manufactured and sold at the lowest possible cost.

The organization's activities include a national network of facilities with blood banks, clinics, and treatment centers as well as referral services. It has also established a Behavioral Science Department to explore the nonmedical aspects of hemophiliacs’ problems, such as education, vocational guidance, and psychological needs.

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